What is this organisation?

ERN eUROGEN (ERN eUROGEN) is an interest representative listed in the EU Joint Transparency Register under ID 240482147281-07. Entity form: Network.

What category is it registered under?

It is registered under the category "Non-governmental organisations, platforms and networks and similar".

Which country is it based in?

The organisation is based in Netherlands, Nijmegen.

Where can I find its EU Transparency Register entry?

The full register entry — including lobby budget, EU funding received, accredited representatives and Commission meetings — is available on the EU Transparency Register under ID 240482147281-07.

EU TRANSPARENCY REGISTER · 240482147281-07 · Netherlands

ERN eUROGEN

Stated objectives

24 European Reference Networks (ERNs) facilitate discussion on rare diseases and complex conditions requiring highly specialised treatment and concentrated knowledge and resources. ERN eUROGEN is the European Reference Network (ERN) for Rar…

As declared by the registrant. Truncated to 240 characters; full text on the upstream profile.

Official profile

The full record on the Joint Transparency Register carries financial information (lobby budget, EU funding received), the list of named accredited representatives, declared interests of those persons, and a history of meetings with Commission officials.

Full register entry ↗ Organisation website ↗

Registered

2022-07-29

Last updated

2026-01-05

Other NGO / platform in Netherlands

Other registered organisations in Netherlands

Frequently asked questions

What is this organisation?: ERN eUROGEN (ERN eUROGEN) is an interest representative listed in the EU Joint Transparency Register under ID 240482147281-07. Entity form: Network.
What category is it registered under?: It is registered under the category "Non-governmental organisations, platforms and networks and similar".
Which country is it based in?: The organisation is based in Netherlands, Nijmegen.
What are its stated goals?: As declared by the registrant: 24 European Reference Networks (ERNs) facilitate discussion on rare diseases and complex conditions requiring highly specialised treatment and concentrated knowledge and resources. ERN eUROGEN is the European Reference Network (ERN) for Rar…
Where can I find its EU Transparency Register entry?: The full register entry — including lobby budget, EU funding received, accredited representatives and Commission meetings — is available on the EU Transparency Register under ID 240482147281-07.

Source: EU Joint Transparency Register (Council / Commission / Parliament) · refreshed 2026-07-05 · Commission Reuse Decision 2011/833/EU