EU TRANSPARENCY REGISTER · 569004047856-53 · Germany
ARVC-Selbsthilfe e.V.
Category
NGO / platform
Country
Germany
Unterschleissheim
Entity form
gemeinnütziger eingetragener Verein (VR 207841)
Stated objectives
Eine Patientenorganisation für die seltene genetische Herzerkrankung ARVC/ACM, arrhythmogene (rechtsventrikuläre) Kardiomyopathie.Wir bieten Unterstützung und Information für ARVC-Patienten und ihre Familien durch die Organisation von Onlin…
As declared by the registrant. Truncated to 240 characters; full text on the upstream profile.
Official profile
The full record on the Joint Transparency Register carries financial information (lobby budget, EU funding received), the list of named accredited representatives, declared interests of those persons, and a history of meetings with Commission officials.
Registered
2022-10-10
Last updated
2026-03-27
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Frequently asked questions
- What is this organisation?
- ARVC-Selbsthilfe e.V. is an interest representative listed in the EU Joint Transparency Register under ID 569004047856-53. Entity form: gemeinnütziger eingetragener Verein (VR 207841).
- What category is it registered under?
- It is registered under the category "Non-governmental organisations, platforms and networks and similar".
- Which country is it based in?
- The organisation is based in Germany, Unterschleissheim.
- What are its stated goals?
- As declared by the registrant: Eine Patientenorganisation für die seltene genetische Herzerkrankung ARVC/ACM, arrhythmogene (rechtsventrikuläre) Kardiomyopathie.Wir bieten Unterstützung und Information für ARVC-Patienten und ihre Familien durch die Organisation von Onlin…
- Where can I find its EU Transparency Register entry?
- The full register entry — including lobby budget, EU funding received, accredited representatives and Commission meetings — is available on the EU Transparency Register under ID 569004047856-53.
Source: EU Joint Transparency Register (Council / Commission / Parliament) · refreshed 2026-06-30 · Commission Reuse Decision 2011/833/EU