EU TRANSPARENCY REGISTER · 592117824784-97 · Ukraine
Charitable Foundation Children with Spinal Muscular Atrophy
CSMA
Category
NGO / platform
Country
Ukraine
Kharkiv
Entity form
non-profit
Stated objectives
The Children with Spinal Muscular Atrophy (CSMA) is a voluntary, non-profit foundation in Ukraine whose mission is to provide support and information for anyone affected by or involved with Spinal Muscular Atrophy (SMA). SMA is a motor neur…
As declared by the registrant. Truncated to 240 characters; full text on the upstream profile.
Official profile
The full record on the Joint Transparency Register carries financial information (lobby budget, EU funding received), the list of named accredited representatives, declared interests of those persons, and a history of meetings with Commission officials.
Registered
2016-11-29
Last updated
2026-03-22
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Frequently asked questions
- What is this organisation?
- Charitable Foundation Children with Spinal Muscular Atrophy (CSMA) is an interest representative listed in the EU Joint Transparency Register under ID 592117824784-97. Entity form: non-profit.
- What category is it registered under?
- It is registered under the category "Non-governmental organisations, platforms and networks and similar".
- Which country is it based in?
- The organisation is based in Ukraine, Kharkiv.
- What are its stated goals?
- As declared by the registrant: The Children with Spinal Muscular Atrophy (CSMA) is a voluntary, non-profit foundation in Ukraine whose mission is to provide support and information for anyone affected by or involved with Spinal Muscular Atrophy (SMA). SMA is a motor neur…
- Where can I find its EU Transparency Register entry?
- The full register entry — including lobby budget, EU funding received, accredited representatives and Commission meetings — is available on the EU Transparency Register under ID 592117824784-97.
Source: EU Joint Transparency Register (Council / Commission / Parliament) · refreshed 2026-07-03 · Commission Reuse Decision 2011/833/EU