EU TRANSPARENCY REGISTER · 961973546240-11 · Luxembourg
ALAN asbl-Maladies Rares Luxembourg
ALAN
Category
NGO / platform
Country
Luxembourg
Kockelscheuer
Entity form
Non Profit Organization
Stated objectives
Fostering an environment for people living with a rare disease to realize their full potential through recognition, equal opportunities and improved quality of life.
As declared by the registrant. Truncated to 240 characters; full text on the upstream profile.
Official profile
The full record on the Joint Transparency Register carries financial information (lobby budget, EU funding received), the list of named accredited representatives, declared interests of those persons, and a history of meetings with Commission officials.
Registered
2022-04-26
Last updated
2025-09-15
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Frequently asked questions
- What is this organisation?
- ALAN asbl-Maladies Rares Luxembourg (ALAN) is an interest representative listed in the EU Joint Transparency Register under ID 961973546240-11. Entity form: Non Profit Organization.
- What category is it registered under?
- It is registered under the category "Non-governmental organisations, platforms and networks and similar".
- Which country is it based in?
- The organisation is based in Luxembourg, Kockelscheuer.
- What are its stated goals?
- As declared by the registrant: Fostering an environment for people living with a rare disease to realize their full potential through recognition, equal opportunities and improved quality of life.
- Where can I find its EU Transparency Register entry?
- The full register entry — including lobby budget, EU funding received, accredited representatives and Commission meetings — is available on the EU Transparency Register under ID 961973546240-11.
Source: EU Joint Transparency Register (Council / Commission / Parliament) · refreshed 2026-06-30 · Commission Reuse Decision 2011/833/EU