What is this organisation?

Alpha-1 Europe Alliance asbl (A1EA (only used internally!)) is an interest representative listed in the EU Joint Transparency Register under ID 9827213103101-24. Entity form: NPO.

What category is it registered under?

It is registered under the category "Non-governmental organisations, platforms and networks and similar".

Which country is it based in?

The organisation is based in Belgium, Brussels.

Where can I find its EU Transparency Register entry?

The full register entry — including lobby budget, EU funding received, accredited representatives and Commission meetings — is available on the EU Transparency Register under ID 9827213103101-24.

EU TRANSPARENCY REGISTER · 9827213103101-24 · Belgium

Alpha-1 Europe Alliance asbl

A1EA (only used internally!)

Stated objectives

The object (i.e. the activities) of the Association is to: a) Represent the voice of the European Alpha-1 patient community among European and international stakeholders, b) Advocate for pathways to access to timely diagnosis and the best e…

As declared by the registrant. Truncated to 240 characters; full text on the upstream profile.

Official profile

The full record on the Joint Transparency Register carries financial information (lobby budget, EU funding received), the list of named accredited representatives, declared interests of those persons, and a history of meetings with Commission officials.

Full register entry ↗ Organisation website ↗

Registered

2026-03-12

Other NGO / platform in Belgium

Other registered organisations in Belgium

Frequently asked questions

What is this organisation?: Alpha-1 Europe Alliance asbl (A1EA (only used internally!)) is an interest representative listed in the EU Joint Transparency Register under ID 9827213103101-24. Entity form: NPO.
What category is it registered under?: It is registered under the category "Non-governmental organisations, platforms and networks and similar".
Which country is it based in?: The organisation is based in Belgium, Brussels.
What are its stated goals?: As declared by the registrant: The object (i.e. the activities) of the Association is to: a) Represent the voice of the European Alpha-1 patient community among European and international stakeholders, b) Advocate for pathways to access to timely diagnosis and the best e…
Where can I find its EU Transparency Register entry?: The full register entry — including lobby budget, EU funding received, accredited representatives and Commission meetings — is available on the EU Transparency Register under ID 9827213103101-24.

Source: EU Joint Transparency Register (Council / Commission / Parliament) · refreshed 2026-07-01 · Commission Reuse Decision 2011/833/EU